Friday, 16 February 2007

Neurosurgeon - Mr Wadley Royal London


I met with my neurosurgeon on 14th February and feel very positive about the outcome. He told me that in his opinion the cavernoma was too deeply in bedded in my brain stem to remove with invasive surgery. I was very relieved to know that this decision had been taken from me, this might sound strange but I felt such relief I can't tell you. However he would recommend me as an ideal candidate for gamma knife surgery which is non invasive surgery, I had read a little bit about this. This would not remove it completely but would reduce the risk of a re bleed from 30% down to 2%. I am going to have another MRI scan and get an up to date image of the brain stem and meet with him again in May. I felt strange having a conversation with someone who had more interest in my condition (the brain stem cavernoma) than with me and how I was coping emotionally, but hey that's his specialism.
I had physio today my first session since the bleed in October, I have muscle wasting in my right shoulder, causing me some pain, it was great to get some specific exercises to address this.
I have been doing yoga and some light cardiovascular exercise on my own up until now, which he was pleased with.

I am feeling very positive and happy really to be able to get on with my life and not be afraid. It might sound weird to anyone reading this but I know I am going to be alright and for now I am OK. I am due back to work at the end of February and think this is going to be OK to, I am confident and know that although my options have reduced ( I know I can get a second or third opinion about surgery)I feel great about the options I have.

Chat to you soon x

Tuesday, 13 February 2007

brain surgery


I am due to see the brain surgeon tomorrow and as those that know me 'know' Feb 14th is my birthday. I feel very positive, and have just had a lovely meal with my daughter her boyfriend Carl and Tony my husband. I am having breakfast in the morning with one of my closest friends and am hoping the day will go well. I meet the surgeon at the Royal London at 2.30pm, I have a list of questions of my own and ones that my sister downloaded for me, thank you Wendy I love you.
I will post the information here and answer some of the questions I hope! I have just finished reading Sacha Bonners book, 'Dipped into Oblivion' she like me had a brainstem cavernoma, which bled when she was only twenty years old. Eventually she did have it removed by an American surgeon leaving her with some disabilities post surgery, however she is now writing for the Daily Telegraph health page so she must have overcome these to some extent.
I met someone I used to know a while ago today, and he reminded me that he had a brain hemorrhage 2 years ago and the Royal London had taken care of him, even flying a surgeon over from Switzerland to complete the surgery. I am taking this as a very positive sign, he reassured me that I was in the right place, lets hope I feel the same after my meeting tomorrow.

Love to you all xxx